Yesterday at clinic I arrived at 7:15am and had the obligatory bloodwork done and true to their word when I walked into clinic at 8:30 they already had most of the results.
Incredible.
I was then greeted by Dr. Yang, not Dr. Narins as I had expected.
- A little aside here.
Dr. Yang is the "Big Chief" at Pinnacle transplant center, he is a brilliant man, a renown transplant surgeon who has been at it for a very long time, and everyone highly respects his expertise and skill.
However, where Dr. Narins (one of the surgeons who actually operated on me) will come in and sit down, talk to me, discuss things in detail, answer all my questions to my satisfaction, examine me, and explain the next course of action, Dr. Yang comes in with a wonderful smile, shakes my hand, tells me how great I look, explains that my "numbers" are perfect, (textbook perfect yesterday.) and gives me short answers to my questions and leaves.
He is very amiable, but he is very busy man and I get that feeling.
Dr. Narins had told me he would change me off one of my meds to something different yesterday to ease the tremors. Dr. Yang, not so much. Instead he boosted one of my drugs that I'm already on in an attempt to calm things down but does not want to make the big drug change until.......and get this.......
AFTER NEW YEARS.
Can you say GRRRRRRRRR?
I about swallowed my tongue!!! I said WHAT?!?!?!?!? I mean these tremors are really bringing me down. They are relentless - 24/7.
The only pretzel-logic answer I got was: "You don't want to be in the hospital over the holidays!"
"True words" I said, "But Thanksgiving is still two months away!" to which he repeated:
"You do NOT want to be in the hospital over the holidays!
Just tolerate the tremors through the holidays then we will make the big switch afterwards."
Maybe it's just me but......this seemingly significant possibility of "being in the hospital" because of a med change doesn't sound like a very good way to start the new year.
Bob is a bit bummed. I mean, everyday, people ask me how I am feeling and I want to say "Great!"
instead I have to say "As soon as they get the meds worked out I will be great."
On other fronts, they took me off of CellCept (after I just received 60 days worth from the pharmacy) and put me on Myfortic which is a slight derivation of CellCept, hopefully w/o the side effects associated with CellCept.
I know, I know,....you warned me about this Jan.
As for the nagging cough, they agree with Dr. Daly's treatment and want me to follow his instructions.
So what started with the joy of "Your numbers are text-book perfect" was tempered a bit with everything else.
But this is my road and I'll walk it.
Sorry for all the bitchin' today. I'll cheer up for next time.
Thanks for checking here.
gotta vent once in a while! stay the course. keep the faith. you have over come a lot already. you will over come this as well.
ReplyDeleteYep, you have every right to bitch....but remember, I have no problem walking that road beside you! Bitch all you want! I have a feeling there will be 'light at the end of the tunnel'! Always, Jo :)
ReplyDeleteAnother day closer to better :-)
ReplyDeletedont feel bad for venting...you need to get out your frustrations so you can focus on your continued healing. Im sorry the tremors are driving you mad...but there will be a day when your doctors will get them under control. Perhaps its as simple as this is best course of drug therapy to get you thru the coming flu/cold season...perhaps they just need to do what is best for your new organs to stabilize completely before modifying your chemistry. You will get thru this...adapt the best you can...and enjoy the nice weather while we still have it...and always be sound.
ReplyDeletekeeping you in thoughts and prayers - hang in there! Love ya! Cuz Laura
ReplyDeletethinking about you and will continue to keep you in prayer.
ReplyDeleteoooooops! I forgot to put my name. Last comment from Dona!
DeleteBy the way, cool pic of your 2 fingers with the 2 candles signifying your 2 month anniversary of your surgery! :) Laura
ReplyDelete