Saturday, June 4, 2011

Not this time.....

Alright so....fifteen hours later I just heard back from the transplant center and although I would have been a match, the pancreas from the donor was not a viable organ. So I'm not getting it nor is anybody else. So THAT was a bit of a roller coaster day. But hey, I was told this kinda thing would happen and I guess it's good to have a dry run just to get used to things. Thanks for all the calls, texts, prayers and other good vibes. I am really fortunate to have such friends.
Whoa! It's 2:30am June 4th, which happens to be my parent's wedding anniversary and I just got 'The Call' from Pinnacle telling me that I am a 'back-up candidate' for available pancreas / kidney organs. Right now they are running blood / tissue matches and I am in a holding pattern but this could be it! I'll post more news when it's available. If you've got an extra prayer...

Thursday, June 2, 2011

Sometimes you're just not OK....

My latest bloodwork has showed that my Potassium, which was waaaaaaay out of bounds has come back to the highest level of normal and is holding there, so this is a big relief. You never know just how much a simple thing like potassium levels can really mess with your body. I went through a episode of what was diagnosed to be "Potassium Paralysis" where I woke up one morning with full body, stroke-like symptoms and couldn't move, couldn't talk,....nothing. Thankfully these symptoms went away when my potassium was adjusted a bit and I will be happy if I never have to go through that again.
So my potassium is a bit better now, my creatinine is relatively steady, but my GFR has fallen to 21 which is kind of  drag because they want you to start dialysis when it hits 15. I remain grateful for days that I feel good and try not to gripe too much on the days that I don't. I'm also grateful for all of you that check here to see how I'm doing. I appreciate each of you. Thanks.