Friday, November 15, 2013

And in the end....


Today was my last installment  of the Cytomegalovirus Immune Globulin IV.
With a little bit of pre-IV Tylenol and Benadryl, the chills were kept to a minimum this time. So although I still take a very pricey drug called Valcyte twice a day to protect against CMV, the IV portion of the program is over.

With the new drug that I started 10 days ago the tremors have gotten a wee bit better at times. And as I was out to dinner with some friends last Saturday night I noticed, quite unbelievingly, that for the first time since the surgery, I was as steady as a stone. Then, much to my chagrin, Sunday I had the tremors back full force.

At clinic yesterday Dr. Yang actually seemed excited to see me and find out how the new drug Neoral is doing controlling the tremors. I told him that I've noticed a small, slight improvement and this was all it took to make him happy. This and the fact that the results of my blood labs on Monday were excellent. He had been concerned that changing this primary anti-rejection drug might cause things to go south and was super happy to see that all my numbers were still good. Now he wants to continue to watch my blood numbers and, if they hold, in three weeks he wants to lower my dose of Neoral to see if it continues to diminish the tremors.

The "Fine Tuning" portion of our program.

That's how we're finishing the first half of this month of November.

Thanks for checking here.

Wednesday, November 13, 2013

Dang!!!! Flippin' ARGH!!!!

                                                              REJECTED.
                                                       Bob is not a happy boy.

In a rather revolting development the oral surgeon Dr. Seitz took a  "Whoa Nellie!!!" mindset after learning that I'm only 3 months post transplant.

 He took a quick, very cautiously quick look and said: "I'll give you some meds to deal with that for now but we are going to try everything we can to wait for the customary six month time after transplant to do any removal."
After all my work to get myself in a zen-like state and after all the prerequisite, pre-event antibiotics. Dang.

The tx center hadn't been real happy that I needed tooth removal right now stating that everybody's mouth (and BTW-TMI) is just a virtual vat of infection waiting for an opportune moment. This, along with my rather... ahem...well documented history of extensive bleeding after surgery, was the deciding factor in the Doc canceling today's eXtraction.

He says it's a fine line that we're walking here because my transplant - being so recent, and me being so immunosuppressed, that infection could flare in this tooth at anytime but, by the same means, opening up things right now could be an invitation to a bad party and so we are going to try to hold out, wait and see. 

The Doc did give me a scrip for more antibiotics and a few other drugs (yep. more pills.) and told me if things become intolerable that they will get me in on a moment's notice and it will be done.
So I got that goin' for me....which is nice.

That's all the non-news for now.

Clinic and some more Yin with Dr. Yang tomorrow.

Thanks for checking.

Monday, November 11, 2013

Time isn't holding us.....

This coming week is action packed with blood tests, a few large doses of prophylactic antibiotics for certain necessary dental maneuvers, (i.e. - wisdom tooth removal), clinic appointment, more blood labs, and I finish out the week on Friday with the third, and hopefully final, installment of the 3 hour Cytogam IV therapy.
Sans chills.

Doesn't seem fair that only some of us get to have all this fun.

If you care to hear how any of it goes check back later. 
I'll be sure to post something.

Thanks for checking in.