Friday, September 14, 2012

About-face...

OK, so after everything I have written here for the past year and a half, this is going to seem a pretty extreme swing in the opposite direction...

After some considerable emotional urging from some people very close to me and a heartfelt plea from my daughter I've decided to give the process of dialysis another look.

Ugh.

 As much as the whole deal just wigs me out, I am going to try to adapt because, quite frankly, the fuse is burning and my options are really beginning to narrow pretty quickly now.

There's a good bit to getting up and actually beginning this treatment, and so I am scheduled for my first day of "Dialysis Education" (doesn't this sound like fun?) on Tuesday.

I'll keep you all posted.

Thursday, August 23, 2012

What's hotter than a late August day?

.....the heat I've been taking for not updating this blog!

Ok, so here goes.....

There have been no calls for quite a while now so nothing new to report there.
I did have a nephrologist appointment last week and the doctor again expressed his concern about my current numbers. My GFR had actually risen by 1 point to an 11. Woo Hoo!
But my BUN and creatinine have also risen and this is not good.
Dr. Schendel has pretty much realized the futility of talking dialysis with me.
This time, instead of trying to get me to have a fistula implanted in my arm, he said that soon I may want to consider having a catheter put into my chest for treatment.
Argh.

On this end.....I just keep on keeping on.
I'm betting the whole farm on the one call that I hope to get from Pinnacle soon.

Thanks for checking in here.
I'll keep you posted.

Sunday, July 22, 2012

And again...

The organs went to the primary candidate at Geisinger, another transplant facility.

Once again I ask you to say a prayer for the recipient and for the donor's family.

Thanks.

Saturday, July 21, 2012

Déjà vu

Another day... Another call... Another 'back-up' kp offer...

Wasn't even going to post this, but just got another call to put me on standby (again) as a backup on a set of organs. It's funny, how months ago, a call like this with so much life-changing potential riding on it would have set me on edge.
Now I will just take the "wait and see" attitude.

Again, this time I am just a "back-up".
So again.... I will keep you all posted.

Thanks.

Tuesday, July 17, 2012

Nope.

Just got a call. The organs went to the primary candidate.
Say a prayer for them and say a prayer for the donor's family.

Thanks.

Monday, July 16, 2012

Pinnacle calling...

Just got a call from the transplant center telling me I am on standby for a kp set.
I am "backup", not the primary candidate, so I have to take this all in stride.

As always, they tell me just to "go along like nothing is happening"......right.
I'm allowed to have dinner, but nothing after midnight just in case.

Supposedly a young donor so this would be very good if it were to happen.

Stay tuned.