Saturday, October 12, 2013

It's funny when things change so much... It's all state of mind

Things got a little interesting this week as I changed one of my main immunosuppressant drugs from CellCept to Myfortic as I had posted earlier. 
Myfortic is a slight derivation of CellCept but supposedly without some of the nasty side effects, so far this seems to be pretty much the case. Not total absolution of side effects, but definitely less.

The other item of interest was the call I got this week from the tx center as it seems word had gotten back to Dr. Yang that I was not totally down with his quick dismissal of the tremors for an additional 3-4 months. The good doctor wanted me to come up and see him Thursday morning so he could explain things a bit more succinctly, which he did. 

What I hadn't realized to the fullest extent was just how wigged out the whole team had been about the one, brief, episode of rejection that put me back in the hospital at the end of August. Evidently such sudden episodes aren't quite the norm so early in the immediate post hospital days.
At the time, it seemed to me, that they handled everything so quickly and so matter-of-factly that this wasn't anything too big to worry about.
Thursday, I learned that they were a bit more worried than what I was initially led to believe. And so with this episode in the not so distant past, Dr. Yang does not want to risk any such episode again any time soon. He told me that most transplant surgeons do not mess with the time proven cocktail of the three immunosuppressants that I'm currently on until, at the very least, the 3 month mark and prefer waiting until 6 months out.
Not completely dismissing my problem with the tremors this time, he scheduled me to see him on Halloween (very close to the 3 month mark.) He will then review my blood labs from the past 3 months and will council me as to whether or not we can safely make a switch.

And so it goes.

Thanks for checking in here.

2 comments:

  1. And so it goes...as I said before...one step closer to better! One step at a time...baby steps grow up to big steps and before you know it you'll be looking back at all this and still be amazed! What a miracle! Prayers are continuous!

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  2. Everyone is hanging in there with you cuz - one step at a time! I believe! Laura

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