Just the right amount of wrong...

So......I had my appt. with the nephrologist last week and although he was happy with my 2 pt increase in GFR, he told me that it is only buying me more time.

I continue to have a low appetite, I'm still losing weight, and I'm awoken nightly with killer leg cramps. The doctor still says that within 6 months I will need to be on the big D, but I'm now on a mission to prove him wrong.

If it's just "buying time"  then so be it.

But I'll buy all the time I can until I'm broke.

Thanks for checking in.

Summer Rally!!!

OK, so my next kidney doctor appt. is not until June 13th, but I reviewed the results of my latest blood labs online this morning and in a purely premature, pre-emptive  proposal I'm going to go out on a limb and say that my results look a tiny bit BETTER!

My red blood count is scary low and my BUN numbers are way too high, but my GFR (the biggie) actually went up 2mL to 10. JOY!

I'll see what the doc says on the 13th, but for now.....it's a thumbs-up day for me!

Half way through the month of May - be...

Just posting here so no one thinks that I've fallen off this big blue marble.

Not much at all to report. Nothing from the tx center and this gets to be a bit disheartening as it's been almost a year now since they have called with any potential offers.
My next kidney doctor appt. is June 13th.
People are constantly asking me how I am feeling these days and it's pretty much the same story each day to varying degrees. Most of the nasty symptoms are listed here. 
But not all is lost - my skin is the same as it ever was. There's no funky Michael Jackson-ish stuff happening.

So that's about it for now. I really do appreciate all of you checking in here.
Thanks so much.
I'll keep you posted.

I'll thank my mind to clear....

Yesterday, being April 1st, I had my appointment with my nephrologist and it was a bit less amusing than a bad April Fool's joke.

I was aware that my latest lab results were not good but it still hit me like a punch in the gut when,  after looking at my labs and then looking me over, the doctor said quite emphatically to me:
"I can promise you within six months you're going to need to be on dialysis."

He is aware, as are most of you, that I am still
C O M P L E T E L Y against this course of action.

And so I have a lot of thinking to do.

Praying for calm.

Looking for guidance.

Right now my brain hurts.

I'll keep you posted.

No Foolin'

April is National Donate Life Month.

Someday a generous person may save your life or that of someone you know.
Did you know that you have a higher chance of needing an organ in your lifetime than ever becoming a donor?
Think about that one. And then sign up to be a organ donor.
The tens of thousands of people waiting will be forever grateful.

(Thanks Jan.)

Happy Easter to All!

Got a bit of depressing news this evening-
The results of my latest bloodwork show my GFR has fallen to 8.
(Remember normal is > 60).
: (

I have an appt. with my nephrologist first thing Monday.
I'll keep you posted.

Nothing but the past is done...

Just left the check-up by the fistula surgeon.

He tells me I have "a fine fistula" and it's "good to go".

Enough said.