Monday, July 16, 2012

Pinnacle calling...

Just got a call from the transplant center telling me I am on standby for a kp set.
I am "backup", not the primary candidate, so I have to take this all in stride.

As always, they tell me just to "go along like nothing is happening"......right.
I'm allowed to have dinner, but nothing after midnight just in case.

Supposedly a young donor so this would be very good if it were to happen.

Stay tuned.

Saturday, July 7, 2012

Further down the spiral...

Ugh. I just saw the results of my latest bloodwork and it is not good.
My Glomerular Filtration Rate (GFR) has fallen to 10. "Normal" is >= 60.
Your GFR tells how much kidney function you have. It can be estimated from your blood level of creatinine. If your GFR falls below 30 you need to see a kidney disease specialist.
A GFR below 15 indicates that you need to start treatments like dialysis or have a kidney transplant.

I can use a prayer.
Who is the patron saint of transplants???

Sunday, July 1, 2012

Night moves...

Had another late night call last night and started out for the hospital......again....and then was cancelled........again.
Grrrr.

I have a boatload of bloodwork to get done tomorrow. I'm keeping my fingers crossed that my numbers are still viable.

Thanks for checkin'!

Tuesday, June 19, 2012

A nothing sound.....

Alright, so I've been getting some grief lately that this blog went from 90 to nothing but quite frankly, that's just the way it goes.

I haven't had any exciting calls lately. No major doctor appointments (next big one is in late July).
I did receive  a call from my transplant coordinator after the last fiasco telling me to "not go very far".
I had a couple short trips planned for this summer but she seems to think that anything farther than 2 hours away is really "rolling the dice". But then, as alway, she quickly covered herself and said "Having said that, it may be months until you get another call". Argh.

And so that's where things stand as of now.
I do appreciate you all checking in here so feel free to give me grief anytime about keeping things updated.  ; )

Until the next...

Sunday, May 20, 2012

Another bust....

Got the word at 1:30 that the recovered organs just weren't up to par so I'm on my way home. I gotta believe this will happen sometime but until then I feel like the boy who cried "transplant!".
Thanks for all the thoughts, prayers, and calls.
I'll keep you posted.

Sunday. Sunday. Sunday.

After a very long night, the lead surgeon just came by to tell me that they are recovering organs right now and I should know by noon but, he also said there is a pretty good chance that I may not even get these organs (long story).
I'll keep you all posted.
Give a wink to a statue at church for me today.
Thanks.